Registry

Find out more about the Wilson's Disease registry and how data is collected and used.

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In the eighteenth century the German philosopher Immanuel Kant developed a theory of knowledge in which knowledge about space can be both a priori and synthetic. According to Kant, knowledge about space is synthetic, in that statements about space are not simply true by virtue of the meaning of the words in the statement.

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According to Kant, knowledge about space is synthetic, in that statements about space are not simply true by virtue of the meaning of the words in the statement. In the eighteenth century the German philosopher Immanuel Kant developed a theory of knowledge in which knowledge about space can be both a priori.

How does the registry work?

As easy as pie. Create completely customizable conversational surveys and traditional forms in only a couple of steps.
Step 1
Consultation
Patients are consulted and can choose to include their data in the registry if they wish. Patients who agree have their data added to the database.
Step 2
Analysis
Data is analysed annually by a number of organisations and the results are published in the registery.
Step 3
Reporting
A full annual report and a reduced report are  produced and made available online for patients and health care professionals.
Done
Data Updates
Have your data collected easily by saving responses that aren't submitted, having your respondents continue when they come back and much more!

Apply for access to the registry

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About iWilson's Disease Registry
The Wilson's Disease Registry is a secure centralised database, sponsored and managed by Orphalan. It records health data on consenting people with Wilson's Disease (WD) throughout the world.
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GL-ORPH-CORP-24005 | August 2024
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